Patients and Families Face Devastating Consequences from Congressional Inaction

Today, 36 nonpartisan, nonprofit patient advocacy organizations issued the following statement urging Congress to secure an immediate solution to the expiration of the enhanced advance premium tax credits (APTCs). Millions of Americans are now shopping for 2026 health coverage and discovering unaffordable premium increases. As a result, many are walking away from coverage altogether. 

“Across the country, patients and families are opening their renewal notices and discovering that their monthly premiums have doubled or even tripled. For many, the choice is stark: either go without coverage or pay more than they can afford. These are not abstract numbers—they represent life-altering consequences for small business owners, early retirees and people living with serious or chronic illnesses who depend on access to consistent, high-quality care. 

“For patients with chronic conditions, being able to afford treatment is non-negotiable—but without comprehensive insurance options, patients lose that fight before it begins. Other types of insurance may appear cheaper – but almost without exception, they exclude essential services and health benefits, offer discriminatory plan design, and leave patients exposed to crushing medical bills when they need care most. It is clear to patients with cancer, diabetes, [and others], that plans that take shortcuts are no solution at all. 
“Every day of inaction means more patients priced out of high-quality coverage and more families forced to make impossible choices between health care and other necessities. The only viable path forward is a straightforward, immediate reauthorization of the enhanced APTCs so that patients and consumers can enroll in affordable coverage now that meets their healthcare needs effective January 1. 

“Ensuring access to affordable, high-quality health coverage is a nonpartisan issue that affects every community in America. Our organizations have repeatedly called on Congress to protect patients, families and the integrity of the health insurance marketplace by supporting a permanent reauthorization of these critical tax credits. Today, we call on Congress to swiftly advance the House proposal for a clean, three-year extension of the enhanced APTCs until a permanent solution can be secured. The cost of delay is measured in lives and livelihoods—Congress cannot allow that to continue.”

AiArthritis 
American Diabetes Association 
American Heart Association 
American Kidney Fund 
American Lung Association 
Arthritis Foundation 
Asthma and Allergy Foundation of America 
Blood Cancer United, formerly The Leukemia & Lymphoma Society 
Cancer Nation 
CancerCare 
Coalition for Hemophilia B 
Crohn's & Colitis Foundation 
Cystic Fibrosis Foundation 
Diabetes Patient Advocacy Coalition 
Epilepsy Foundation of America 
Foundation for Sarcoidosis Research 
Hemophilia Federation of America 
Immune Deficiency Foundation 
Legal Action Center 
Lupus Foundation of America 
Lutheran Services in America 
March of Dimes 
Muscular Dystrophy Association 
National Alliance on Mental Illness 
National Bleeding Disorders Foundation 
National Health Council 
National Kidney Foundation 
National Multiple Sclerosis Society
 National Patient Advocate Foundation 
National Psoriasis Foundation 
Pulmonary Hypertension Association 
Sickle Cell Disease Association of America, Inc.
 Susan G. Komen 
The AIDS Institute 
WomenHeart: The National Coalition for Women with Heart Disease 
ZERO Prostate Cance
 

For more information, contact:

Jill Dale
312-940-7001
Jill.Dale@Lung.org

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