Newly Diagnosed with Bronchiolitis Obliterans

Find Out More About Bronchiolitis Obliterans

• If you are newly diagnosed, it is helpful to learn about bronchiolitis obliterans, what your treatment options are and how it is managed. 
• Talk to your healthcare provider about your diagnosis to better understand how it will impact your life and what steps you can take to ensure you have the best quality of life. 

Take Care of Yourself

Staying healthy when you are living with a chronic lung disease is important so that you avoid flare ups, your condition doesn’t worsen and you decrease the risk of damaging your lungs.  You can take these steps to following a healthy lifestyle: 

• Quit smoking, e-cigarettes, and vaping 
• Avoid exposure to unhealthy air, both indoors and outdoors 
• Avoid infections through hand washing, staying away from others who are sick, and getting vaccinations that are recommended by your healthcare provider 
• Choose healthy foods and stay active; talk to your healthcare provider about what activity is right for you

Connect with Others 

No person facing a chronic lung disease should go through it alone.  There are online and in-person support groups available.  Finding a group early in your journey will provide you with more opportunities to get information about your disease, empower you to better manage your disease, and give you the support you need. 

• Living with Lung Disease Community (online support community) 
• Better Breathers Clubs (in-person or virtual support groups) 

You can also call the Lung Association's Lung Helpline at 1-800-LUNGUSA to talk to a trained respiratory professional who can help answer your questions about bronchiolitis obliterans and they can help connect you with support.